Symptoms What to look for/be aware of Investigation & treatment and/or referral pathway Further reading


  • Planning should start at 14.
  • Introduce to GP – annual (getting to know me) appointment.
  • Early referral to:

    • Community Learning Disability Nursing Team
    • Community Physio
    • Community OT
    • Community SaLT
    • Community Mental Health services as appropriate
  • Referral from paediatric consultant care to adult teams.
  • NHS Continuing Health Care as appropriate.
  • Neuro rehabilitation medicine to take responsibility.